MDS - Myelodysplastic Syndromes

Welcome to UK MDS Forum!

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

European Haematology Association

Milan June 2014

The UK MDS Forum is pleased to announce that they will be awarding a Bursary of £1300 to contribute towards the costs of a Haematologis and a Scientist to attend the European Haematology Association Annual Meeting in Milan, June 2014.

The applicants must be UK based

A panel of members from the Executive Board of the UK MDS Forum will choose the Bursary winners

Financial support towards attendance at the EHA has been provided by Celgene Ltd via an educational grant

Please complete the application form Click here

News Alert

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator


Click here

BCSH Guideline

This is an external  link to the home of the British Society for Haematology (BSH). 

bsh logo

Click here