MDS - Myelodysplastic Syndromes

Welcome to UK MDS Forum!

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

UK MDS Forum Education Day Latest Slides

UK MDS Forum Education Day - October 2015



(click on the names to access to the presentations)
Doctor Robin Ireland: Slider
Doctor Omar Abdel-Wahab: Slider
Doctor Shahram Kordasti: Slider
Professor Antonio Pagliuca: Slider
Doctor Victoria Potter: Slider
Professor Charles Craddock: Slider
Professor Ian Macdougall: Slider
Professor Judith Marsh: Slider

MDS Call to Action

  • call-01.png
  • call-02.png
  • call-03.png
  • call-04.png

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator


Click here

MDS Fact Sheet

MDS Factsheet for GPs General Practicioners


Click here

Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

NICE logo

Click here

BCSH Guideline

This is an external  link to the home of the British Society for Haematology (BSH). 

bsh logo

Click here