MDS - Myelodysplastic Syndromes

Welcome to UK MDS Forum!

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

The winner of the EHA award 2015

Simona Valleta

Simona Valleta


Winning Scientist - Simona Valletta, LLR Molecular Haematology Unit, Nuffield Division of Clinical Laboratory Sciences, Radcliffe Department of Medicine, John Radcliffe Hospital, Oxford, UK

Abstract title:Correction Of Mutations Of The Epigenetic Modifier ASXL1 In Myeloid Leukemia Cells By CRISPR/Cas9 Genome Editing.

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UK MDS Forum Education Day Latest Slides

UK MDS Forum Education Day - Friday 17th October 2014


(click on the slider to access to the presentations)
Doctor Petter Woll: Slider
Doctor Nicholas Lee: Slider
Doctor Hadil Abuargoub: Slider
Doctor Austin Kulasekararaj: Slider
Professor David Bowen: Slider
Kes Grant: Slider

MDS Call to Action

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Post-ASH Manchester

Post-ASH London

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator


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MDS Fact Sheet

MDS Factsheet for GPs General Practicioners


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Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here

NICE Guideline

Lenalidomide for treating myelodysplastic syndromes (MDS) associated with an isolated deletion 5q cytogenetic abnormality.

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BCSH Guideline

This is an external  link to the home of the British Society for Haematology (BSH). 

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Click here