MDS - Myelodysplastic Syndromes

Welcome to UK MDS Forum!

The UK MDS Forum was established with the remit to increase the awareness of MDS through education, setting up regional MDS registries and increasing the recruitment of MDS patients to National and International trials throughout the UK. We hope that you find the web site useful and would welcome suggestions for additions to the site.

We also strongly encourage colleagues from around the UK who are interested in the clinical and scientific aspects of MDS to join The Forum and help to make it a vibrant and inclusive organisation.

Dr Sally Killick, Secretary UK MDS Forum

The two winners of the EHA award

Elena Crisa



Winning clinician - Elena Crisa, Honorary Clinical Research Fellow, Department of Haematology Research, King's College Hospital NHS Foundation Trust, London/Abstract title: Isolated total monosomy 7 is associated with better prognosis in a large cohort of MDS patients compared with other abnormalities of chromosome 7 - a single institute experience.


Andrea Pellagatti

>Andrea Pellagatti


Winning Scientist - Andrea Pellagatti, LLR Molecular Haematology Unit, Nuffield Division of Clinical Lab Sciences, University of Oxford/Abstract title: Comprehensive analysis of mutation status, gene expression profiles, blood and bone marrow counts and outcome in patients with myelodysplastic syndromes.

IPSS-R MDS Risk Assessment Calculator

Revised International Prognostic Scoring System (IPSS-R) for Myelodysplastic Syndromes Risk Assessment Calculator


Click here

BCSH Guideline

This is an external  link to the home of the British Society for Haematology (BSH). 

bsh logo

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Varicella Vaccine in MDS

Urgent Clarification on varicella vaccine policy

Current advice from the UK MDS Forum is not to give the Live Varicella Vaccine to patients with MDS.

Please read below correspondence between Professor Salisbury and Dr George Follows, the latter on behalf of the CLL Forum, on the varicella vaccine policy.
This is an external link to the British Society for Haematology  Click here